Searchable abstracts of presentations at key conferences in endocrinology

ea0020oc6.4 | Paediatric Endocrinology/Bone | ECE2009

Appearance matters: the impact of perceived altered appearance as a result of Klinefelter's syndrome on psycho-social functioning

Jackson Sue , Morris Marianne

Background: Klinefelter’s syndrome (KS) is a genetic condition affecting men with the potential to severely reduce their testosterone levels and affect their physical appearance. Being a syndrome there are a variety of different symptoms which individuals may experience to a great or lesser extent. While much research has been directed at understanding the cognitive impact of KS much less research has been undertaken considering the psycho-social impact of living with the...

ea0020p563 | Neuroendocrinology, Pituitary and Behaviour | ECE2009

The impact of infertility on the relationship of people with a Pituitary condition

Morris Marianne , Harrison Pascale

Background: Evidence from a Needs Analysis (2006) and Patient Satisfaction Survey (2008) for people with pituitary conditions, suggested infertility was a key yet unexpected problem for the majority of respondents. Being infertile without the co-morbidity of having a pituitary condition confers a huge emotional burden on the couple concerned. The aim of this study was to explore in detail the effects infertility imposed on people with a pituitary condition.<p class="abstex...

ea0028p138 | Growth and development | SFEBES2012

More information, please! Results of a survey on men with Klinefelter’s syndrome and their satisfaction with information and support from healthcare professionals

Jackson Sue , Morris Marianne , Ruddle Georgina

Introduction: Klinefelter’s Syndrome (KS) is a genetic condition affecting men with the potential to severely reduce testosterone levels and affect physical appearance. Being a syndrome there are a variety of different symptoms which individuals may experience to a great or lesser extent. With no screening programme in place, KS may not be detected until puberty, or until men have problems starting a family. As a result, many different healthcare professionals (HCPs) are ...

ea0020p601 | Neuroendocrinology, Pituitary and Behaviour | ECE2009

From the horse’s mouth: recommendations to improve care for pituitary patients. Results from a survey on pituitary patients’ satisfaction with information and support from healthcare professionals

Jackson Sue , Morris Marianne , Murray Jane , Woods Tony

Introduction: Pituitary conditions are rare and diagnosis may be slow because symptoms are ambiguous. The treatment may be a combination of surgery, radiotherapy and medication so patients see many healthcare professionals (HCPs). This survey sought to assess patient satisfaction with the information and support they receive from GPs, endocrinologists, neurosurgeons, radiotherapists, specialist nurses, and other agencies (e.g. the pituitary foundation).M...